Data Access and Management
Access and manage data with our secure tools
Your one-stop-shop for services related to data access and collection.
This page is broken down into four sections, the first is administration which contains information relating to common data agreements, the second is clinical data access listing all the ways to get access to health record data, the third is available data repositories, third is data management resources, and last is applications that can be used to collect/process new data.
This page compiles resources from across all UCLA Health IT units and additional services offered by UCLA Health and campus. This means some services may not be supported by our teams and we have linked to the owner's site where possible. However, if you have any questions, please submit a ticket and our teams will do their best effort to get your needs resolved. Click here to submit a ticket →
Material Transfer Agreements
Consult with the Technology Development Group regarding Material Transfer Agreements (MTA) or Data Use Agreements (DUA) used to manage the transfer of tangible research materials, data and databases, and software between two organizations.
Supported by: Technology Development Group (TDG)
Third Party Data Agreements
CTSI supports UCLA Health faculty members interested in establishing Third-Party Health Data Agreements with any for-profit or not-for-profit entities outside UCLA Health.
Supported by: Clinical and Translational Science Institute (CTSI)
Learn more
Clinical Data Access:
Find points of contact to obtain secure access to health records. Getting access to this data is often a prerequisite to using certain resources.
Cohort Identification - Preparatory Counts (i2b2, ENACT, LADR)
Access patient counts for study inclusion criteria from i2b2, LADR (Los Angeles Data Repository) and ENACT (Evolve to Next-Gen Accrual to Clinical Trials). Also get assistance in choosing other institutions to approach for participation for larger sample sizes.”
Supported by: Clinical and Translational Science Institute (CTSI)
Discovery Data Repository (DDR)
Self-service access to UCLA Health's Electronic Health Record (EHR) data for research can be accomplished with the Discovery Data Repository (DDR). The DDR is an Analytic-Ready de-identified data repository and a set of tools and technologies to enable secure and compliant back and front-end access to underlying data.
SlicerDicer (EHR Data Exploration Tool)
A self-service data exploration tool used to access and explore data from the electronic health record. Typically used for cohort selection and data exploration.
Access to UCLA Health Patient Data
CTSI provides access to UCLA Health Patient Data through an Honest Broker. Data and tools for analysis are provisioned into an appropriate data storage service.
Supported by: Clinical and Translational Science Institute (CTSI)
ATLAS (Human Genomic Data)
A clinical and genomic data resource for cutting-edge translational research containing a diverse sample of patients across UCLA Health engaged in precision health research.
Supported by: Institute for Precision Health (IPH)
Integrated Diagnostics IDX Shared Resource
The Integrated Diagnostics Shared Resource generates, maintains, and facilitates access to longitudinal, highly curated radiology-pathology data linked to clinical, molecular, and outcomes information.
Supported by: Integrated Diagnostics
Data Management Consultation
DGIT: Consult with our DGIT Research Informatics team to discuss issues relating to data management, research storage or computation, and data sharing for grants.
Learn more from the DGIT Research Informatics team
UCLA Library: Consult with the UCLA Library Data Science Center to discuss issues relating to data managment, data sharing, and reproducible data analysis.
Visit the UCLA Library Data Science Center webpage
Data Management Planning Tool
The Data Management Planning Tool (DMPTool) is a UC-managed tool with built-in data management plan templates for grants and projects.
Data Management for the Sciences Guide
A guide to best practices for management of research data, including links to data services from the University of California.
UCLA Science Library’s Data Management for the Sciences Guide
Data Management Webinars
A collection of DGIT-hosted webinars focused on issues in research technology regarding data management.
NIH Data Management and Sharing Guidelines
Find critical information regarding the policy, links to official NIH documentation, FAQs, plus webinar recordings hosted by DGIT and the UCLA Library on the new Complying with NIH Data Management and Sharing Requirement webpage.
Data Repositories:
A list of common data respositories. All of these are options for fulfilling NIH data sharing requirements.
UCLA Dataverse Data Repository
A generalist data repository managed by the UCLA Library for publishing, citing, and preserving research data. No identified or clinical data will be accepted. This is offered at no cost to UCLA researchers.
Dryad Data Repository
A generalist data repository co-developed by California Digital Library (CDL) for publishing, citing, and preserving research data. No identified or clinical data will be accepted. This is offered at no cost to UCLA researchers.
Vivli Data Repository
A data repository built for sharing anonymized clinical research/subject data. Accepts only anonymized clinical data. There is no cost to UCLA researchers for standard usage.
NIH Approved Data Repository
A list of discipline-focused data repositories for fulfilling NIH data sharing requirements. Visit repository websites for details on what types of data are accepted and any costs.
Zenodo Open Repository
A generalist repository often used for publishing code, data sets and software used in research. This is offered at no charge for UCLA researchers.
Qualtrics
Qualtrics, a HIPAA and FERPA-compliant online survey platform, makes it easy to generate surveys, process data, and even create reports that help you share your findings.
REDCap
REDCap (Research Electronic Data Capture) is a secure, web-based application for quickly building and managing online surveys, data collection forms and databases.
Supported by: Clinical and Translational Science Institute (CTSI)