Data Access and Collection
This page is broken down into three sections, the first is administration which contains information relating to common data agreements, the second is clinical data access listing all the ways to get access to health record data, the third is available data repositories, and last is applications that can be used to collect/process new data.
This page compiles resources from across all UCLA Health IT units and additional services offered by UCLA Health and campus. This means some services may not be supported by our teams and we have linked to the owner's site where possible. However, if you have any questions, please submit a ticket and our teams will do their best effort to get your needs resolved. Click here to submit a ticket →
Consult with the Technology Development Group regarding Material Transfer Agreements (MTA) or Data Use Agreements (DUA) used to manage the transfer of tangible research materials, data and databases, and software between two organizations.
Supported by: Technology Development Group (TDG)
CTSI supports UCLA Health faculty members interested in establishing Third-Party Health Data Agreements with any for-profit or not-for-profit entities outside UCLA Health.
Supported by: Clinical and Translational Science Institute (CTSI)
Learn more
Clinical Data Access:
Find points of contact to obtain secure access to health records. Getting access to this data is often a prerequisite to using certain resources.
Access patient counts for study inclusion criteria from i2b2, LADR (Los Angeles Data Repository) and ENACT (Evolve to Next-Gen Accrual to Clinical Trials). Also get assistance in choosing other institutions to approach for participation for larger sample sizes.”
Supported by: Clinical and Translational Science Institute (CTSI)
Self-service access to UCLA Health's Electronic Health Record (EHR) data for research can be accomplished with the Discovery Data Repository & Dashboard (DDR&D). The DDR&D is an Analytic-Ready de-identified data repository, a cohort discovery dashboard, and a set of tools and technologies to enable secure and compliant back and front-end access to underlying data.
A self-service data exploration tool used to access and explore data from the electronic health record. Typically used for cohort selection and data exploration.
CTSI provides access to UCLA Health Patient Data through an Honest Broker. Data and tools for analysis are provisioned into an appropriate data storage service.
Supported by: Clinical and Translational Science Institute (CTSI)
A clinical and genomic data resource for cutting-edge translational research containing a diverse sample of patients across UCLA Health engaged in precision health research.
Supported by: Institute for Precision Health (IPH)
The Integrated Diagnostics Shared Resource generates, maintains, and facilitates access to longitudinal, highly curated radiology-pathology data linked to clinical, molecular, and outcomes information.
Supported by: Integrated Diagnostics
Data Repositories:
A list of common data respositories. All of these are options for fulfilling NIH data sharing requirements.
A generalist data repository managed by the UCLA Library for publishing, citing, and preserving research data. No identified or clinical data will be accepted. This is offered at no cost to UCLA researchers.
A generalist data repository co-developed by California Digital Library (CDL) for publishing, citing, and preserving research data. No identified or clinical data will be accepted. This is offered at no cost to UCLA researchers.
A data repository built for sharing anonymized clinical research/subject data. Accepts only anonymized clinical data. There is no cost to UCLA researchers for standard usage.
A list of discipline-focused data repositories for fulfilling NIH data sharing requirements. Visit repository websites for details on what types of data are accepted and any costs.
A generalist repository often used for publishing code, data sets and software used in research. This is offered at no charge for UCLA researchers.
Qualtrics, a HIPAA and FERPA-compliant online survey platform, makes it easy to generate surveys, process data, and even create reports that help you share your findings.
REDCap (Research Electronic Data Capture) is a secure, web-based application for quickly building and managing online surveys, data collection forms and databases.
Supported by: Clinical and Translational Science Institute (CTSI)
