NIH Data Sharing Policies – Tips for Participant Protections and Data Security

Policy and how they harmonize with one another. This talk will delve into participant protections describing frameworks to consider when working with participant data, especially from American Indian or Alaskan Native Populations. This talk will also update the community to security standards when requesting data from NIH controlled-access data repositories that store and provide access to data shared under the Genomic Data Sharing Policy. This talk is a good overview of what investigators should expect when subject to these policies and how to prepare to comply with expectations of each.

Speaker:

Cheryl Jacobs, PhD 
Health Science Policy Analyst, Division of Scientific Data Sharing Policy 
Office of Science Policy, Office of the Director, NIH